Comments on: Dramatically increased subsidy for insulin pumps http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/ Blog about life with type 1 diabetes, medical research and the search for a cure. Thu, 09 Feb 2012 03:14:04 +0000 hourly 1 http://wordpress.org/?v=3.0.4 By: gergretger http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/comment-page-1/#comment-802 gergretger Tue, 31 Aug 2010 20:26:15 +0000 http://www.jdrf.org.au/blog/?p=463#comment-802 all us oldies can just die, all us oldies can just die,

]]> By: min http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/comment-page-1/#comment-465 min Sat, 08 May 2010 00:57:59 +0000 http://www.jdrf.org.au/blog/?p=463#comment-465 save all these arguments and give up on the insulin pump...... an accelerated pathwayway toward a CURE..... that will save $$$$$$... give up on the pharmaceutical predators save all these arguments and give up on the insulin pump…… an accelerated pathwayway toward a CURE….. that will save $$$$$$… give up on the pharmaceutical predators

]]> By: melissa http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/comment-page-1/#comment-358 melissa Fri, 05 Mar 2010 08:52:39 +0000 http://www.jdrf.org.au/blog/?p=463#comment-358 good 2 hear they r finally doing something to help thouse people including myself with type 1 diabetes, but im 23, so i guess im forgotten about....i cant aford $8000....good 2 c the government cares more about money then the health of there people.... good 2 hear they r finally doing something to help thouse people including myself with type 1 diabetes, but im 23, so i guess im forgotten about….i cant aford $8000….good 2 c the government cares more about money then the health of there people….

]]> By: Janet Holmes Ashman http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/comment-page-1/#comment-352 Janet Holmes Ashman Sun, 28 Feb 2010 07:11:48 +0000 http://www.jdrf.org.au/blog/?p=463#comment-352 This is great news, a big help to alot of families but I agree with so many other comments, type 1 does not go away when a person hits 18, my daughter is nearly 12 and I am already worrying about how she will cope financially when she reaches 18, I can see that my husband and I will be supporting her for a very long time into her adult life. I think so much emphasis is spent on type 2 that the type 1's get forgotten - lets face it type 1's did NOT inflict this on them selves through lifestyle choice. This is great news, a big help to alot of families but I agree with so many other comments, type 1 does not go away when a person hits 18, my daughter is nearly 12 and I am already worrying about how she will cope financially when she reaches 18, I can see that my husband and I will be supporting her for a very long time into her adult life.
I think so much emphasis is spent on type 2 that the type 1's get forgotten – lets face it type 1's did NOT inflict this on them selves through lifestyle choice.

]]> By: Janet Holmes Ashman http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/comment-page-1/#comment-353 Janet Holmes Ashman Sun, 28 Feb 2010 07:11:48 +0000 http://www.jdrf.org.au/blog/?p=463#comment-353 This is great news, a big help to alot of families but I agree with so many other comments, type 1 does not go away when a person hits 18, my daughter is nearly 12 and I am already worrying about how she will cope financially when she reaches 18, I can see that my husband and I will be supporting her for a very long time into her adult life. I think so much emphasis is spent on type 2 that the type 1's get forgotten - lets face it type 1's did NOT inflict this on them selves through lifestyle choice. This is great news, a big help to alot of families but I agree with so many other comments, type 1 does not go away when a person hits 18, my daughter is nearly 12 and I am already worrying about how she will cope financially when she reaches 18, I can see that my husband and I will be supporting her for a very long time into her adult life.
I think so much emphasis is spent on type 2 that the type 1's get forgotten – lets face it type 1's did NOT inflict this on them selves through lifestyle choice.

]]> By: Linda http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/comment-page-1/#comment-350 Linda Fri, 26 Feb 2010 23:20:21 +0000 http://www.jdrf.org.au/blog/?p=463#comment-350 Oh My God ! if what Pam say is the case re: centerlink/ health care card what chance dose a special needs child/ diabete have if the rules are not changed ASAP. Thanks for the info as we are coming up behind and have no idea what other pitt falls lie ahead for our daughter & us. Oh My God ! if what Pam say is the case re: centerlink/ health care card what chance dose a special needs child/ diabete have if the rules are not changed ASAP. Thanks for the info as we are coming up behind and have no idea what other pitt falls lie ahead for our daughter & us.

]]> By: Roslyn http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/comment-page-1/#comment-349 Roslyn Fri, 26 Feb 2010 05:35:19 +0000 http://www.jdrf.org.au/blog/?p=463#comment-349 Yes, could not agree more Yes, could not agree more

]]> By: Carl http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/comment-page-1/#comment-347 Carl Fri, 26 Feb 2010 02:08:05 +0000 http://www.jdrf.org.au/blog/?p=463#comment-347 Zoe A tip - when/if your pump packs up - immediately contact the Service Dept of the pump manufacturer and ask them for a free replacement. They get most of their revenue from the pump consumables (which the Govt pays before passing them onto NDSS at highly subsidized prices) - so they have a powerful incentive to not "lose you" to a competing product. If you think this is a long-shot, well in 5 years I have had two Medtronic MiniMed Paradigm replacement pumps free - once when my pump got submerged in water when I fell into a pool - and once when it just stopped working. On the first occasion I was in Thailand - and one phone call to the Australian service desk fixed it. On both occasions they air-freighted an immediate replacement and requested that I send the faulty one back and on both occasionsthey eventually sent me a permanent replacement. Perhaps their service was exceptional? but most likely it's standard practice to retain a (potentially life-long) customer. Zoe

A tip – when/if your pump packs up – immediately contact the Service Dept of the pump manufacturer and ask them for a free replacement. They get most of their revenue from the pump consumables (which the Govt pays before passing them onto NDSS at highly subsidized prices) – so they have a powerful incentive to not "lose you" to a competing product.

If you think this is a long-shot, well in 5 years I have had two Medtronic MiniMed Paradigm replacement pumps free – once when my pump got submerged in water when I fell into a pool – and once when it just stopped working. On the first occasion I was in Thailand – and one phone call to the Australian service desk fixed it.

On both occasions they air-freighted an immediate replacement and requested that I send the faulty one back and on both occasionsthey eventually sent me a permanent replacement. Perhaps their service was exceptional? but most likely it's standard practice to retain a (potentially life-long) customer.

]]> By: Carl http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/comment-page-1/#comment-346 Carl Fri, 26 Feb 2010 01:56:30 +0000 http://www.jdrf.org.au/blog/?p=463#comment-346 Hi Jamie I was struck by your children's health records. I have had Type 1 for 23 years and my younger sister developed crohn's disease about 6 years ago - both as adults. Both being auto-immune diseases, I wondered how common this pattern actually was. I wish you luck with your children - as I know how expensive my sister's drugs are (and she also ends up in hospital far more than I do). By the way I have been on a pump for 5 years now and have found it "liberating" and very flexible. I would encourage you to explore the pump option with your son - if this scheme helps. The Govt subsidises the (otherwise very expensive) pump consumables through the NDSS which makes it more affordable Hi Jamie

I was struck by your children's health records. I have had Type 1 for 23 years and my younger sister developed crohn's disease about 6 years ago – both as adults. Both being auto-immune diseases, I wondered how common this pattern actually was.

I wish you luck with your children – as I know how expensive my sister's drugs are (and she also ends up in hospital far more than I do).

By the way I have been on a pump for 5 years now and have found it "liberating" and very flexible. I would encourage you to explore the pump option with your son – if this scheme helps. The Govt subsidises the (otherwise very expensive) pump consumables through the NDSS which makes it more affordable

]]> By: Carl http://www.jdrf.org.au/blog/2010/02/08/dramatically-increased-subsidy-for-insulin-pumps/comment-page-1/#comment-345 Carl Fri, 26 Feb 2010 01:46:41 +0000 http://www.jdrf.org.au/blog/?p=463#comment-345 Jambo - sorry to pick you up but pump consumables are already heavily subsidised through the NDSS - and not means tested! There are further concessions if you are entitled to a health concession (such as age or diasability pension). However diabetes can be an expensive disease - and the drug and machine companies look to make substantial profits on their various competing products. We may all be better served if there was some co-ordination of our buying power - substance over consumer choice? This is one area JDRF could take the lead? There was a comment that we should be pushing for "continuous glucose sensor" consumables - and I am sure that once the technology has been practically proven (and probably some standardisation occurs to reduce the range of equipment seeking support) that the Govt will bring these into the NDSS at a significantly reduced price. Jambo – sorry to pick you up but pump consumables are already heavily subsidised through the NDSS – and not means tested! There are further concessions if you are entitled to a health concession (such as age or diasability pension).

However diabetes can be an expensive disease – and the drug and machine companies look to make substantial profits on their various competing products. We may all be better served if there was some co-ordination of our buying power – substance over consumer choice? This is one area JDRF could take the lead?

There was a comment that we should be pushing for "continuous glucose sensor" consumables – and I am sure that once the technology has been practically proven (and probably some standardisation occurs to reduce the range of equipment seeking support) that the Govt will bring these into the NDSS at a significantly reduced price.

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