To Canberra for the Cure!
One hundred Juvenile Diabetes Research Foundation Youth Ambassadors aged 3 to 40, all with type 1 diabetes, will converge on Canberra to plead for continued government funding for type 1 diabetes research on 18 March.
Supported by a crowd of family members, total numbers at Kids in the House will hit 300. They are visiting Canberra as representatives of the 140,000 children and adults in Australia with type 1 diabetes, and the tens of thousands more who care for them.
The Youth Ambassadors will personally meet with nearly 100 MPs to explain why they desperately need government funding for a Clinical Trials Network, which would improve Australian patients’ access to the latest science and speed up the process of curing the serious disease they will otherwise have for life.
JDRF CEO Mike Wilson said it was critical for MPs to understand the serious health implications of type 1 diabetes and the need for continued support of Australian research.
“Australian patients deserve access to the best science, and we should take every opportunity to be the ‘clever country’.”
“The Clinical Trials Network will turn the best science into benefits for patients, by helping to translate the best of Australian research into improved clinical outcomes and attracting international trials and investment to Australia.”
“Investment in the Clinical Trials Network would be a continuation of existing research support, and JDRF will leverage this funding with help from local philanthropists.”
“We know that public investment in research delivers returns, so support of the Clinical Trials Network is a step toward reducing one of the heaviest burdens on Australia’s health system – diabetes.”
“On top of this, the human impact of a cure is incalculable.”
“Australia has one of the highest rates of type 1 diabetes in the world and the rate of new cases in children in this country is rising by 3% every year. This situation is urgent.”
Sign Our Petition
Show your support for The Clinical Trials Network by signing our petition below. We will give the signatures to the Prime Minister at the Kids in the House event. Send this page to your friends, family and collegues now as it will be given to the Prime Minister on Thursday 17th March.
Please note, you must have a valid email address for your signature to be recorded. Your email address will NOT be recorded.
James Ellis,
jacquie cunningham,
My daughter is 13yrs old and has had type1 for a year now. This is a time in her life when she should be a carefree teenager. This disease is 24/7 job to keep under control. Please we need this clinical trial.
Belinda Sims,
we need to find a cure
Narelle Rigney,
Our children are our future. If we can find a cure for this, lives will be saved and the burden on our health system will dramatically reduce.
Susan A,
Please listen to the people that live with type 1 and lets find a cure to that they can live a healthy normal life.
rachel gower,
I hope the government take heed from this petition as this is one of the biggest curses that any person has to live with.Julia please help.
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Matthew Jones,
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Diabetes has been in my family since my brother was diagnosed with it. It is not simple living with it. Please never ever give up on finding a cure. It is a very cruel disease.
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I have had Diabetes for 10 years and both my uncle and grandfather died of complications so this is really needed! And soon. It makes me not want to have children of my own so as not to inflict this upon them.
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Kristin Parle,
Kate Beaty,
Andrew and Rosalie Supple,
PLEASE find a cure soon. It breaks our heart when our 7 year old wishes he didn't have diabetes, and we can't do a thing.
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Thanks to JDRF! You're doing an amazing job, i just hope that a cure will be uncovered in the near future because it's a 24/7 condition that is tough for an adolescent like myself to commit to controlling.
Keep it up
Vinusha Rajeswaran,
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I was diagnosed with Diabetes at the age of 2 at Princess Margaret Hospital. We were told that there would probably be a cure within 6 years. 6 years passed and Diabetes still lives on. You don't ever get a break with Diabetes, it's always there reminding you that you need to keep trying. Please, we need a cure, for those of us that have it and for the children whose lives will be affected by this chronic condition.
Sally Bolton,
We need more clinical trials now
Margaret Dodd,
Simone Kingston,
Denise Nicholls,
Penni Grooms,
I was diagnosed at 18 - old enough to be able to take steps try to live with my condition . Hard enough for me, let alone a child! I am now 25,000 injections down the track and to have the power to save even 1 person from having to do the same would be worth it.
The Geddis Family,
In support of Billie, and everyone with type 1. Lets speed up the process PM.
Gracie 8, Millie 9, Zara, 4 Flynn 2 and Paul and Wendy
Julie Brennan,
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Tracy Horner,
I have a 10 year old son with type 1.Ii is the most insidious, unrelenting illness one could ever have let alone see a child go through seemingly for the rest of their lives. We need a cure!!!
Maxine,
pop bonny,
Alexandra Bishop,
Many thanks to JDRF for all the great work that they do.
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Melissa Viers,
sandra dujela,
Anthony Price,
My 8 year old son has Type 1 diabetes (since 1 year of age) and his life would be so much easier if a cure could be found.
Krystie Harding,
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Josie Davenport,
Anita Saxton,
Lets find a cure for our children our future
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Jo Sherriff,
Helen Black,
Simon Rolfe,
andrew McMillan,
Megan Dicker,
Kevin Blanch,
Vanessa Drummond,
My 5yr old (diagnosed type 1 at 2 yrs 11m) told me the other day that he was sick of having diabetes and that those doctors need to hurry up and find a cure!!! Please help them hurry up and find a cure!!!
David Stratton,
Karen Thrift,
Christine Whittall,
Tuesday Veldhoven,
I think this is a really good thing to do. No one in my family as Type 1 Diabetes, and neither do I, but I would like to participate in this, just to see what goes on. Is there any way I can do this?
This is always a great event that really show the government how important the cure is. Thanks to everyone involved.
Hi Noel. Our daughter Josie was diagnosed when she was 5 and is now 9 just like your grandson. The worrying never ends for parents and grandparents. Josie now has an insulin pump which has given her considerably more freedom and much more stable levels. All her grandparents are more at ease with taking her overnight as ahe no longer needs injections. The cannular site is changed every 3 days and we have trained the grandparents with this and counting carbohydrates. Josie and I are off to Canberra and we will do everything we can to make the politicians to our story ande the stories of people just like you, your grandson and his parents.
Lisa
you may not have someone with type 1 in your family YET but it can and dose happen without warning it happened to our family 2 yrs ago many who i met in same boat never had it and feels like more get it every year is like catching a cold so help us stop it by finding a cure donation to JDRF and letters to government is most urgent 24/7 lets stop our families and friends getting this killing disease act now in the mean time we say you live your life we will try fit in were we can
Our 9 year old grandson was diagnosed with type 1 diabetes when he was 5 years old.
He has unstable diabetes and his and his parents' life is hell.
As grandparents we would love to be able to have him stay over, (and this would give his parents a break), but managing his diabetes is way beyond us.
Hopefully, our "politicians" will do something to make life better for sufferers of this terrible disease.
I was diagnosed with type 1 diabetes when i was 6 years old…I’m 24 this year. I can’t wait for a cure…This is a great event to help show the government how important a cure is….
What a great initiative. Only sufferers and their families can truly appreciate the impact of this disease on the daily lives of all involved. Good luck to all attending. I hope our politicians take notice and provide some significant research funding. It would surely be money well spent. How about the government matching its home insulation "investment" dollar for dollar. A few hundred million would surely help.
Good luck to all participants, I totally support your objectives. I hope sincerely, that after all the money the Federal Government has spent over the last 18 months, they at least can see their way clear to support funding for this extremely worthwhile cause.
Hi Noel and family,
My name's Shelby and I am 16 this year. I have had diabetes since I was 9 and I am on am insulin pump. It is amazing. You should tell your grandson and/or his parents about them. I didn't go on a pump until I was 13 and the 4 years that I had to have injections were hell. Like your situation, I wasn't allowed to go stay over at anyone elses places overnight, and as a teenager, that was hard. I hope you and your family manage his diabetes well!
From Shelby.
PS, Tell your Grandson that he's not alone. Everyone with diabetes has bad days.
Dear Noel, we are in the same situation so lets hope they find a cure so we can gat our grandchildren back.Good Luck.
Hi Noel, I was 6 when I was diagnosed with Type 1 and I am now 31.
I just wish that everyone would realise how important it is to find a cure for Type 1. I believe that most people are more focused on Type 2 and forget about Type 1 and not to mention that Type 1 (at the moment) is for life. I was recently told that I needed to have a pump, but I can't afford to buy one and the grants stop at the age of 18. What do the politicians think that as soon as you reach 18 you no longer have Type 1? God I wish it was that simple!!!!
Good luck to all that are going!!! Please speak on our behalf, our 9yr son Fletcher has Type 1 Diabetes, and it breaks our heart daily seeing what he has to go thru……………
Our 4 year old daughter is part of this event. Diagnosed at 12mths and on a pump since late last year we all hope that a cure is closer each day. Go Lexi.