Comments on: Thousands Support CTN but No Funding Announcement Yet http://www.jdrf.org.au/blog/2010/07/29/thousands-support-ctn-but-no-funding-announcement-yet/ Blog about life with type 1 diabetes, medical research and the search for a cure. Thu, 09 Feb 2012 03:14:04 +0000 hourly 1 http://wordpress.org/?v=3.0.4 By: Carina Duncan http://www.jdrf.org.au/blog/2010/07/29/thousands-support-ctn-but-no-funding-announcement-yet/comment-page-1/#comment-766 Carina Duncan Wed, 18 Aug 2010 10:15:25 +0000 http://www.jdrf.org.au/blog/?p=877#comment-766 Have just received the "communal" email from Hon Nicola Roxon's office! I also received a labour party response from a "office helper" a few weeks ago. I'm acctually wondering if Ms Roxon and Ms Gillard is even aware of the JDRF campaign. What a joke! My daughter (aged 19) got so upset today after seeing her endocrinologist that she had a car accident (she's fine but shaken - the car did not do so well), we need a C U R E for type 1 asap. My daughter is a beautiful young woman and rarely complains about her condition but my daughter and other type 1 sufferers deserve the BEST care and research that is available. Have just received the "communal" email from Hon Nicola Roxon's office! I also received a labour party response from a "office helper" a few weeks ago. I'm acctually wondering if Ms Roxon and Ms Gillard is even aware of the JDRF campaign. What a joke!
My daughter (aged 19) got so upset today after seeing her endocrinologist that she had a car accident (she's fine but shaken – the car did not do so well), we need a C U R E for type 1 asap. My daughter is a beautiful young woman and rarely complains about her condition but my daughter and other type 1 sufferers deserve the BEST care and research that is available.

]]> By: min http://www.jdrf.org.au/blog/2010/07/29/thousands-support-ctn-but-no-funding-announcement-yet/comment-page-1/#comment-744 min Thu, 12 Aug 2010 23:21:41 +0000 http://www.jdrf.org.au/blog/?p=877#comment-744 PUMPS ARE NOT THE SOLOUTION!!!!! ... why do we want the govt to subsidise or pay for such expensive mechanisms.PUMPS are only an mechanism for easy management of the illness... DIABETICS WNAT THE MONEY SPENT ON A CURE. PUMPS ARE NOT THE SOLOUTION!!!!! … why do we want the govt to subsidise or pay for such expensive mechanisms.PUMPS are only an mechanism for easy management of the illness… DIABETICS WNAT THE MONEY SPENT ON A CURE.

]]> By: susan alberti http://www.jdrf.org.au/blog/2010/07/29/thousands-support-ctn-but-no-funding-announcement-yet/comment-page-1/#comment-673 susan alberti Mon, 02 Aug 2010 00:02:29 +0000 http://www.jdrf.org.au/blog/?p=877#comment-673 Carmen, great work Thanks. Do not stop, just keeping on lobbying right up until election day. Perhaps we can all follow your lead. Together we will get the "right answer"!! Carmen, great work Thanks. Do not stop, just keeping on lobbying right up until election day. Perhaps we can all follow your lead. Together we will get the "right answer"!!

]]> By: Carmen http://www.jdrf.org.au/blog/2010/07/29/thousands-support-ctn-but-no-funding-announcement-yet/comment-page-1/#comment-671 Carmen Sun, 01 Aug 2010 09:48:14 +0000 http://www.jdrf.org.au/blog/?p=877#comment-671 Hello - I emailed my local member thanking them for their support to the $35m clinical trial network for type 1 diabetes. I received a very positive email back acknowledging how important it is to get Australian medical therapies inline with the rest of the world. However, when I wrote an email to the Prime Minister asking her support for the Clinical trials, the ALP responded with saying they gave us money in the past and some recently for pumps (for those under the age of 18) and went on to say how they are giving more money….but READ BETWEEN THE LINES!!!!!! The money is for type 2!!!!! My diabetes does not stop when I turn 18! There is a pump I really would like to have, but it has not been available over here for the past 5 years!!! Why?!?!? We are so far behind! Hello –
I emailed my local member thanking them for their support to the $35m clinical trial network for type 1 diabetes. I received a very positive email back acknowledging how important it is to get Australian medical therapies inline with the rest of the world.

However, when I wrote an email to the Prime Minister asking her support for the Clinical trials, the ALP responded with saying they gave us money in the past and some recently for pumps (for those under the age of 18) and went on to say how they are giving more money….but READ BETWEEN THE LINES!!!!!! The money is for type 2!!!!!

My diabetes does not stop when I turn 18! There is a pump I really would like to have, but it has not been available over here for the past 5 years!!! Why?!?!? We are so far behind!

]]> By: Lisa http://www.jdrf.org.au/blog/2010/07/29/thousands-support-ctn-but-no-funding-announcement-yet/comment-page-1/#comment-668 Lisa Sun, 01 Aug 2010 09:25:55 +0000 http://www.jdrf.org.au/blog/?p=877#comment-668 I am glad that we have JDRF speaking up for all people living with type 1 diabetes. When it comes to the daily cost of living with diabetes, preventing complications and wanting to find a cure, I only find JDRF carrying my message. Thank you Susan Alberti and all the staff and volunteers carrying my voice!! I am glad that we have JDRF speaking up for all people living with type 1 diabetes. When it comes to the daily cost of living with diabetes, preventing complications and wanting to find a cure, I only find JDRF carrying my message. Thank you Susan Alberti and all the staff and volunteers carrying my voice!!

]]> By: Susan Alberti http://www.jdrf.org.au/blog/2010/07/29/thousands-support-ctn-but-no-funding-announcement-yet/comment-page-1/#comment-654 Susan Alberti Thu, 29 Jul 2010 11:24:42 +0000 http://www.jdrf.org.au/blog/?p=877#comment-654 Just keep lobbying. We must continue our "push" We need the CTN now. I will not rest and neither should any of the type 1 community stop their lobbying. Just keep lobbying. We must continue our "push" We need the CTN now. I will not rest and neither should any of the type 1 community stop their lobbying.

]]> By: Di Mac http://www.jdrf.org.au/blog/2010/07/29/thousands-support-ctn-but-no-funding-announcement-yet/comment-page-1/#comment-653 Di Mac Thu, 29 Jul 2010 09:40:06 +0000 http://www.jdrf.org.au/blog/?p=877#comment-653 Strange isn't it..they the politicians all have time to Twitter & push there own political agenda. Why is it when real people ask for assistance we cannot even get the courtesy of a reply. Strange isn't it..they the politicians all have time to Twitter & push there own political agenda. Why is it when real people ask for assistance we cannot even get the courtesy of a reply.

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