Life with Type 1 Diabetes,
medical research and the search for a cure

Posts Tagged ‘government’

To Canberra for the Cure!

Kids in the House CanberraOne hundred Juvenile Diabetes Research Foundation Youth Ambassadors aged 3 to 40, all with type 1 diabetes, will converge on Canberra to plead for continued government funding for type 1 diabetes research on 18 March.

Supported by a crowd of family members, total numbers at Kids in the House will hit 300. They are visiting Canberra as representatives of the 140,000 children and adults in Australia with type 1 diabetes, and the tens of thousands more who care for them.

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Medtronic Paradigm Insulin PumpMinister for Health, Nicola Roxon MP, has announced an expansion of the Type 1 Diabetes Insulin Pump Program, with a dramatically increased government subsidy of up to 80% of the purchase price of an insulin pump.

The program was first launched in 2008 and provides a means-tested subsidy towards the purchase of an insulin pump for children under 18 who do not have access to private health insurance.

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Copy of Brendan Rose and Kevin Rudd_December 2009After visiting the White House to meet US President Barack Obama with 150 young people from around the world earlier this year, JDRF Youth Ambassador Brendan still had a couple more names on his list of world leaders to meet and talk about type 1 diabetes. He was able to cross another name off recently when he had dinner with the Prime Minister of Australia, Kevin Rudd.

JDRF: How did you come to meet the PM?

Brendan: My Federal MP, Roger Price, invited me to his annual dinner dance.  He was being honoured for serving 25 years in Parliament and invited the PM as his guest of honour.  When we arrived at the dance, I was told by Mr Price’s staff that I would be sitting next to Mr Rudd for dinner, which was quite exciting!

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Changes to the Carer Payment

This information has been provided by the Australian Government Department of Families, Housing, Community Services and Indigenous Affairs.

The Carer Payment provides income support to carers who, because of the demands of their caring role, are unable to support themselves through substantial paid work. The Carer Payment is income and assets tested and paid at the same rate as other social security pensions. Some changes to the Carer Payment will take place from 1 July 2009.

The most important change is to the way qualification for Carer Payment is assessed. The new method that will be used from 1 July 2009 looks at the carer’s total care load.

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…and then Brendan met the President

JDRF Childrens Congress 2009“Remember, don’t call him ‘Barack’ or ‘Obama’. He should only be addressed as ‘Mr. President’”, explained a JDRF staffer at Children’s Congress 2009 in Washington in June. The meeting with the President of the United States was a first in the history of Children’s Congress, America’s equivalent to our Kids in the House events. Thirteen year old Sydney boy Brendan, Australia’s delegate to Children’s Congress, was thrilled to be in Washington to join the occasion.

The Presidential meeting was a secret until the previous day, to avoid disappointment in the event that the schedule had to be changed. Luckily the meeting went to plan, and so Brendan joined the 150 other delegates from across the US and the world who buzzed with anticipation as they visited the heavily guarded presidential residence. Few people are granted access to this building, so envious parents, volunteers and staff were not permitted to join the photo shoot. A close encounter with one of the world’s most powerful men was saved just for the children; after all they are the ones with type 1 diabetes and the best advocates for government support.

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